All-Party Parliamentary Group on Genetic, Rare and Undiagnosed Conditions
To increase awareness in parliament of genetic, rare and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support.
Subject Group; Health, Medicine & Public Health|Social Care, Welfare & Family Support.
Secretariat: Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/
Members
- Alison Hume (Officer)
- Baroness Neville-Jones (Vice Chair)
- Lord Turnberg (Officer)
- Peter Dowd (Chair & Registered Contact)
- Alex Sobel MP
- Alicia Kearns MP
- Bambos Charalambous MP
- Baroness Eaton
- Baroness Finlay of Llandaff
- Baroness Hollins
- Baroness Ritchie of Downpatrick
- Baroness Wheeler
- Jim Shannon MP
- Lord Patel
- Lord Rogan
- Mark Ferguson MP
- Mary Glindon MP
- Sarah Hall MP
- Sharon Hodgson MP
- Steve Race MP
Funding and benefits registered
- Genetic Alliance UK: Benefits In Kind, £7,501-9,000 (received 17 December 2024)