All-Party Group on Rare Disease
To ensure that MLAs can provide informed interest on issues affecting people living with rare conditions across NI (over 120,000 individuals, 1 in 17 of the population). Issues are not simply health related but reflect the totality of life experience, therefore informed cross departmental discussion is important. MLAs have a significant role to play in improving the experience of this community.
Health, Medicine & Public Health.
Members
- Mr Danny Donnelly (Vice-Chairperson)
- Mr Mark Durkan (Chairperson)
- Mrs Ciara Ferguson (Secretary)
- Mrs Deborah Erskine (Treasurer)
- Mr Gary Middleton
- Mr Gerry Carroll
- Mr Justin McNulty
- Mr Patsy McGlone
- Ms Cara Hunter
- Ms Paula Bradshaw
- Ms Sinéad McLaughlin