Cystic Fibrosis Week 2023

Early day motion 1289, tabled 12 June 2023 by Jim Shannon (DUP). Signed by 21 members.

That this House notes that this year’s Cystic Fibrosis Week takes place from 12 to 18 June; recognises that cystic fibrosis is a progressive, life-limiting genetic condition affecting approximately 11,000 people in the UK; acknowledges that whilst research means the median age of death for someone with cystic fibrosis has increased from 31 in 2016 to 38 in 2021, this is still tragically young; highlights that cystic fibrosis not only affects physical and mental health, but impacts people's finances too, with the additional costs of living with cystic fibrosis totalling over £6,500 a year; believes it is shocking that Cystic Fibrosis Trust has found that within the last 12 months one in five had missed a hospital appointment due to the associated costs of the condition; and calls on the Government to implement vital measures to support to those with cystic fibrosis whilst celebrating the vital work of the Trust and incredible progress made in cystic fibrosis research.

Signatures by party: DUP 5, Scottish National Party 4, Labour 3, Plaid Cymru 3, Independent 2, Alba 1, Conservative 1, Labour/Co-operative 1, Liberal Democrat 1.