CYSTIC FIBROSIS TRUST CAMPAIGN
Early day motion 1327, tabled 4 June 2018 by Mike Penning (Conservative). Signed by 82 members.
That this House commends the efforts of the Cystic Fibrosis Trust in campaigning for access to the precision medicine Orkambi; recognises that the campaign has been ongoing for nearly three years; further recognises the urgency of the situation as every month that passes is critical for people with cystic fibrosis; welcomes the negotiations between the NHS and Vertex; and calls on the Government to urgently intervene to help secure a timely resolution to ensure an agreement is reached that will enable patient access to the drug without further delay.
Signatures by party: Labour 35, Conservative 14, DUP 8, Liberal Democrat 7, Scottish National Party 6, Labour/Co-operative 5, Independent 3, Plaid Cymru 3, Green 1.