NATIONAL STRATEGY FOR MOTOR NEURONE DISEASE

Early day motion 198, tabled 24 November 2009 by Mark Todd (Labour). Signed by 186 members.

That this House endorses the call by the Motor Neurone Disease Association for a national strategy for motor neurone disease (MND) and believes that such a strategy would lead to enhanced cost-effectiveness and good practice; supports the implementation of the National Service Framework for Long-Term Neurological Conditions; is dismayed that no official national clinical guidance or approach exists in relation to MND; notes the extreme cruelty of motor neurone disease, which dramatically curtails lives and traps an often healthy mind in a failing and incapacitated body; and further believes that a national strategy is urgently needed in order to address the inequity of access to best practice in care for people with MND and to ensure as high a quality of life as possible and dignity in death.

Signatures by party: Labour 101, Liberal Democrat 42, Conservative 29, DUP 5, Independent 4, Social Democratic and Labour Party 3, Plaid Cymru 1, UUP 1.