PAROXYSMAL NOCTURNAL HAEMOGLOBINURIA

Early day motion 601, tabled 27 January 2009 by David Taylor (Labour). Signed by 36 members.

That this House welcomes the Government's decision to nationally commission services for the treatment of the ultra-orphan disease Paroxysmal Nocturnal Haemoglobinuria (PNH); acknowledges that without treatment with eculizumab patients with this chronic life threatening disease are left only with the options of recurrent blood transfusions and, in a small number, bone marrow transplant; and congratulates the PNH Alliance of clinicians, industry and patients who are working to ensure PNH services continue to improve patient outcomes.

Signatures by party: Labour 21, Liberal Democrat 8, DUP 2, Independent 2, Conservative 1, Scottish National Party 1, Social Democratic and Labour Party 1.